Month: January 2018

reflections and ramblings

Its absolutely incredible. I bought my 1st computer in 1982. Back then the internet as we know it today didn’t exist yet, but there was quite a bit of information out there. Through the years its changed quite a bit and a lot more information exists. Much like the way the internet has changed a lot so have i in the last 36 years.

As my life has changed and i have been challenged in many ways i have become stronger in some areas, weaker in others and i have learned many things. Such as learning that as long as there has been snake oil salesman, snake oil has been sold. Having Psoriasis i have searched the internet for ways to help myself without the need for drugs. I tried a few things that seemed to help a little, but then i was diagnosed with Psoriatic Arthritis i knew then and there that a biologic is the only way to go. How did i know? I had searched high and low for all the information i could get. Being a computer tech all my career i knew how to search and weed out the snake oils. Reading reading reading i knew that it was now a lifetime decision. Should i want to continue to walk in a couple years the only way is to block the disease. Stop it in its tracks. So that’s the way i went about it, what was weird is my right hand never cleared, and as i explained in an earlier post that was due to a nickel allergy. Since finding that out i have been 97 – 100% clear for the past couple years. I continue to search this and i keep finding more and more information. Im finding more food allergy bloggers and i know their findings can help alot.

thoughts?

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International Symbol of Access – Whats YOUR opinion?

International Symbol of Access – Whats YOUR opinion?

When i received my first ISA (International Symbol of Access) badge for my car, it was a temp and red and showed the wheelchair, the newer more modern design that i received in November 2016 shows a person moving in the chair. I like the newer design much more as it shows activity rather than someone stuck there. I wondered when it changed so i looked it up here. https://en.wikipedia.org/wiki/International_Symbol_of_Access and now i am angry as the ISO

7001 thats in charge of these symbols has rejected the newer image. As a person with a permanent disability would like to vote and have my say so.

another year

its hard to believe another year has passed, it was here and now its almost gone. It was a good year overall. It started off on a bittersweet note, after splitting up with my girlfriend of 13 years, it was sad but i was also happy to be able to spread my wings and breathe some fresh air for a change.

In 2017 i went to congress to as for money to be allocated for the CDC, went to a truly phenomenal HealthEVoices.com event in beautiful Chicago, had some awesome Lou Malnati’s pizza, then returned to the same hotel for the National Psoriasis Foundations volunteer conference, and tried Giordanos pizza as well. According to my palate Lou takes the pie. They were both excellent pies but i truly loved the crust on Lou’s butter crust pie. Met up with my Psoriatic family “I know PsO”, volunteered at the NPF’s bike ride as well as the walk, attended a world psoriasis day event…. Im sure i did more but thats all i can think of at the moment, and i cant wait to do it all over again this year, plus more!