Month: August 2020

Another thought….

So after writing about Tactile Allodynia i was thinking about how i could never wear socks to bed….. Yep! In the past i had thought that my socks were too tight or whatever but no. Even those stupid things that you get in a hospital will bother me.

last week i was starting to write down the things that have happened so i have a list for the doctor. My fingertip felt like it was burned. I scratched my head and it hurt. It felt like someone had hit me with a bat. It was sooo sore.

Last night i was cooking dinner when i jumped backwards because i felt something running up my leg. No nothing there. Later i went to bed i couldnt fall asleep rolled over and the sheets ran over my big toe. I literally jumped 3 feet in the air. It felt like i just dragged something over burnt skin.

Fun fun. Every day its something new. I guess this keeps life interesting. You know like your blindfolded playing darts, something else will break but who the hell knows what and where.

Light Bright Migrainy Day

So i woke as normal at 530 this morning and i felt a little off. Pressure on my right temple, then im sneezing. Blow my nose like 50 times. Hmmm i left the air purifier off because i had the windows open the last 2 days, but had to turn the a/c on yesterday afternoon…. That could be it, yea yea thats it…

Coffee, more runny nose etc. Pressure is building, now its 7am. Aura sets in. Im looking around the room and yea i turn my head and i see trails. Wonderful. So i throw a couple eggs in a pan put on another cup of coffee and pop a fioricet. Just as im starting to feel nauseous i eat an egg sandwich, and start on that second cup of coffee.. I drink strong coffee. As dark as i can get it.

Now the pressure sets in, like someone pushing on my head, crushing it. Please medicine, please work for me.

Its been an hour, ive eaten and i can still taste the fioricet. Heads gettng worse. I grab a medicated honey lozenge (weed thank you etain these are awesome!), pop on my cpap mask and head back to bed.

Two hours later im back up. At first no pain. Hmmm maybe….. I move my head. ooops no its still there. damn. Get up, grab another cup of coffee. Munch on a couple cashews.

Damn! Its noon. Ok ill grab a piece of cheese as thats good for the nausea. Ok shower. Hmmm ill go outside and sit with the sun on my back for a few. Collect some D3…. Back inside. Back out…

Back in. buttered noodles for dinner i can’t do much more. More coffee more fioricet, and eventually more weed. Now its 10pm. The day is finally over and i pray this is gone tomorrow…


Yes you read that right. Over the past several years getting very bad at the moment i cant stand wearing a necklace and the waistband on my pants/underwear, my watch after a couple hours drives me nuts. It hurts! Since my daughter has said she wouldn’t be surprised if i had fibromyalgia i was talking to a friend and said hey does this sound familiar? She pointed me here: yes its very much Tactile allodynia.

The only issue i have is that i must wear the necklace. Well when im out anyway. You see its a medic alert necklace, without it im about good as dead if i have an accident as im allergic to Morphine, penicillin, aspirin and nickel so far. Ive checked the chain theres no nickel in it so i couldnt figure out why it hurts so much. Nickel is in the button on your jeans and literally burns when it touches my skin. For years ive either bought pants where the button is sewn on or painted the back of the snap on my jeans with clear nail polish. Simply wearing a tshirt thats tucked in will help but thats not always wanted.

Ill tell you, having a broken immune system can be exciting you are constantly getting new issues, learning things you never knew existed!