Everyone has a story

Since becoming an advocate i have participated in many events. Most where there are other psoriatic patients, however i have participated in advisory board panels and it seems that everytime i do the ones putting on the event share their stories as well. They may not have Psoriasis or Psoriatic Arthritis, like i do, however they either have a family member with it or someone is battling another auto-immune issue or mental health etc. It never fails, everyone shares their stories and that opens the floor before we start sharing our personal experiences. Ive done this many times but this last meeting really made me think. Either everyone in the world is affected by something either through themselves or family, or because of the illnesses in their family they got into the fields they are in, helping patients. This kept going through my head all through the meeting, and after. I keep thinking about it because i believe its the former.

Think about it. Ill bet you know someone with some form of health issues. It could be depression, cancer, alzheimer’s, mobility issues etc. Yes everyone has been touched by something.

So… The next time you meet someone remember they too probably have a story to tell, they too maybe going through something as well.

Its spring, i think…..

So we finally had some good weather, 70-80F. No pain, unless i stand for a long time, all seems to be going well. I went through a bunch of things, decided to do some spring cleaning there were 2 boxes to store, 2 to give away so far, nice. I carried them to the garage, put the air conditioner in the window, then puttered around the house a bit more, and helped my landlord who lives next door (we bolted the power line back to the side of his house) . Some truck was driving down the street you know the ones with the canvas top? He had the top, with the metal bar UP. Ripped the power and cable lines and the power meter right off the house. This happened Thursday at 2:03 PM. I know the time because i jumped on a WebEX meeting, said hello and my screen went blank.

Utility company was out here and power was back on sometime between 4 and 5. Incredible they had a new line up meter mounted and power restored. I was already on another call, this one by phone, as far as internet? We are scheduled for Saturday…. Hence the cleaning etc no internet no life right? LOL

Ok internet was restored just after 4pm nice. i decided at that point to get online and rest a bit.

I fell asleep sometime just after 10pm. I woke at 330am. I had to goto the bathroom but it was 4:19 before i got off the couch. Thats where i had fallen asleep and now my back hurts like hell. Knowing full well theres no way i can lie back down i put the coffee on, did my business then slathered some CBD cream on my back.

Had coffee, more coffee and bacon and eggs, and guess what? Pain is gone. I swear i love this stuff. I was going to take a gelcap or some tincture but the cream did it. Ive tried a number of other brands that did nothing for me but this ones gold. Please check it out here if you are interested. http://bit.ly/2BRqYDr

Full disclaimer that is my affiliate link. i will get a small percentage of your purchase if you buy something today. I would not send you there if i didnt fully believe in the product or if it didnt work for me.

So… How is your spring going?

A long time ago…

When i was a teen i wasn’t interested in working on cars. I wasnt interested in anything but girls and computers. Since i wasnt turning a wrench, wasnt building houses, chopping wood etc i didnt have many of the calluses that many men my age had. All the ladies told me how soft my hands were, yes i was a geek, always on the computer.

In 2005 i was 39 and I was starting to get Psoriasis. In 2007 my hands looked like they had an argument with a cheese grater, and lost. Below is a pic when it was about 1000 times better.

My hands were destroyed. My life changed forever. I thought i would never be the same.

I have since met many other patients advocates i am now clear but i hadnt thought of this until this last April. I was at Healthevoices when another Psoriasis advocate was walking by and we held hands for a second. She then told me i had the softest hands.

She made my day, my month, my year.

Even though Psoriasis has taken so much from me, hurt me so bad, i finally feel like i am winning this battle.

Most painful year of my life….

While its true ive encountered some bad times in my life, but this past winter has beyond a doubt been the most painful year. Why? I dont know, it wasnt cold at all. It hardly snowed. So why?

I understand when it gets really cold and dry in the winter that my joints hurt, but it didnt get that cold. I dont think it was all so dry, but my right hand hurt throughout the winter. It started early on, in the winter. My fingers were throbbing. I put on my thermoskin gloves. Then another day i covered my hand with diclofenac gel. An hour later i did it again, then put the gloves back on. On top of this i took pain pills without knowing that i wasnt supposed to with the gel. Luckily it didnt hurt me but the pain never went away.

Working From Home

Unless you’ve been living under a rock, you pretty much know that americas workforce is working from home minus the essential people. Medical staff, grocery stores, truckers, police, fire, i hope im not missing anyone if i am please forgive me, the rest of the people are being laid off or simply being paid to sit at home to try to stop the spread of Covid-19.

While i know this will help a bit i know it wont completely stop it as there are too many idiots who think they wont get it, its a cold or a conspiracy thing.

I know this isnt typically what i write about but hey its on my mind why not.. Ok enough of the intro and onto the show.

Monday: I setup my laptop at the kitchen table and had a beautiful view of the street and the farm across the street. The sun was shining in and felt, oh so good. Then the sun was shining on the table and i had to put a towel there as it was blinding. Next close the blinds. Not sure when it happened but i started getting a headache maybe from the sun… Later as the sun was overhead i could open everything back up. This setup didn’t work as my kitchen chair is wooden and uncomfortable to sit on for 8 hours. I threw a pillow on it, that helped a little but now enough.

Tuesday: I decided to use my mobile computer cart. I disconnected the desktop and connected my work laptop. I sat on my comfortable Ikea poang. This was much better but i had to sit forward or reach for the keyboard and mouse. Also im using a 32″ TV as a monitor and it was seriously bothering my eyes.

Wednesday: I setup the cart in front of the couch. Much much better. I noted that i may have to visit the office and pickup a monitor this is still bothering my eyes. I am comfortable on the couch, i put the heating pad on my lower back and yes this is better. BOOM! My computer crashed and rebooted. Whats this? The screen looks better? AH! Dummy i said, i need to start the laptop while connected so it picks up the proper resolution. Gotchya wont do that again. 🙂

Thursday: Feeling a little lazy and tired today. Im not going to closeup the couchbed ill just sit at the edge and work. At lunch i fixed it because my back started really hurting trying to sit up that long. Damn. Everything else is good and my headache is finally starting to subside.

Friday: Oh yes. I think i figured this all out everything is working well. Its been a very long week though. My migraine is gone, im comfy on the couch, and to add to it work has quieted down a little.

Friday evening I had some groceries ordered from an online service i use and they cancelled. I was really looking forward to the fresh fruit and veggies i get, so i looked and my local grocery store had a spot open up for pickup. I placed my order quickly. Why was i waiting for pickup/delivery spots? Because I am #immunocompromised and my life counts. #HighRiskCovid19 so I dare not take chances.

So ive actually been trying to order groceries online. they dont have any open slots for pickup or delivery. so since i use https://misfitsmarket.com heres a code if you want COOKWME-SY4GZN and https://imperfectfoods.com code: http://imprfct.us/v/jim_316 the 1st save you 25$ (i think) and the 2nd 10$ the 2nd has more options. These links will save us both money. Please if you are going to check them out do us both a favor.

UGH! – stop it now!

The news is full of everything about corona/covid-19. Sooooooo many people who have Psoriasis/Psoriatic Arthritis and are on biologics keep asking, ‘should i stay on my meds?’

My answer… my thoughts and i heard this from a doctor.

My thoughts? Yes definitely. I have both PsO and PsA. Without the medicine it attacks the joints and i can plan on an early retirement and being unable to walk. No thanks. Treat it naturally? Im not taking chances i like to walk.

What a doctor told me. On a scale of 1 -10 10 being the best immune system in the world, superhuman if you will, and 1 being none (think of ‘the boy in the plastic bubble’ i liked that movie) a normal persons immune system is a 5. Being Psoriatic means im at an 8 or a 9. So taking treatment only knocks it down to a 6 or a 7, my immune system is so superior. Ive had the flu, for a couple hours. Ive had colds that didnt last a day. I cut myself and its gone the next day.

So… Why would i stop my medication? I wont willingly.

What will i do? I will eat right, wash my hands properly, and take my vitamins as i always do, and in addition Ill be careful, and self quarantine.

Please be safe dont shake hands touch your face and sneeze on people. Dont travel unless absolutely necessary. Dont have house parties. Just plain dont be stupid.

Goodbye 2019

Goodbye 2019 you were not my favorite year , you were not my worst year but the bad things outweighed the good so here I am looking forward too much more beautiful 2020.

A quick update

I have started writing for Health-Union.com. I will be posting both on PlaquePsoriasis.com and Psoriatic-Arthritis.com. Ive written 2 articles so far and you can find them here https://psoriatic-arthritis.com/author/aWildandFlakyGuy/ I plan to update my blog and when i write for the other sites, ill be linking to them so you wont miss anything, plus i want to update my blog to show where i can be found what im doing etc. Unfortunately i had to move in August and just after finding out the company i started here 10 years ago , and it will be going out of business. Its extremely depressing watching your friends (actually these people are more like family) leaving constantly for the last 6 months.

Followup on Terrible Tuesday

So…. Its been a month and a half since that horrible day i think its time to follow up. First off i saw the hand surgeon who indeed said the only thing we can do right now is cortisone injections into my hands, since the diclofenac gel is not helping. Since it had been 2 weeks since the last occurance i decided lets wait. I mentioned finger splints and i got 3 of them. I now wear them at night and it seems to help somewhat. This is another reason i advocate. If i didn’t ask i wouldn’t have received the splints. You have to do your research before seeing any doctor. That was friday night.

Saturday morning i went for Acupuncture. I started on Acupuncture in April of 2018, i started every week moved to every other week and now im at every third week. My back still bother me from time to time but the 3 week intervals is pretty much keeping it in check. If you are thinking of trying or or you are skeptical please read my story here: https://psoriatic-arthritis.com/living/acupuncture/ If you have tried and it didn’t work you probably need to see another doctor. Anyway i mentioned my hand and she said that i probably hurt it carrying laptops, monitor or just too much typing and using the mouse. Yes guilty on all charges…. She took my arm placed her thumb just below my elbow and pressed and rubbed. I could feel the knot in there omigod it felt like there was a rock there. It hurt for a minute but as the muscle relaxed under her massage the pain in my fingers disappeared. Yes gone. Completely. This further solidified the need to write about Acupuncture for Psoriatic-Arthritis.com. Now when my finger are bothering me i rub the same spot and i feel better. I do still wear the ringsplints at night but its great to have options.

Terrible Tuesday…..

Tuesday was absolutely horrible. Psoriatic Arthritis sucks.

Lets start at monday. I went to the office my fingers hurt a little. I put some pain cream on them and they felt a little better. Then came tuesday. they hurt. Pain cream. More cream. Pain pill. Then i put on my Arthritis glove just on the right hand. My middle and ring fingers were throbbing. All day long. I pushed my way through the day, trying to focus away from my hand but hey, i work on computers so yes that is my dominant hand stroking the mouse, click click, swipe swipe. It didn’t stop all day, i emailed my rheumy, he said next stop is the hand surgeon, i can get some cortisone shots, fair warning, it hurts like hell, i told him to sign me up, i now have an appointment on October 1st. Hurts like hell. Hmmm that sounds good, so it wont hurt as bad as it does now im thinking.

Well its friday now and the pain has gone down. Ill still see the surgeon, and possibly a hand therapist, as i found ring splints. https://www.arthritis.org/living-with-arthritis/pain-management/joint-protection/ring-splint.php

I’ll let you all know how i make out.