Month: August 2017

#NPFNVC2017

So… I went to the National Psoriasis Foundations Volunteer Conference in Chicago in early August. I had a great time met some new people, some that i had read/followed them online and renewed old friendships, i swear its amazing what happens when a team of volunteers gets together. We give each other ideas, and tons of incentive to keep going for the gold.

I had 2 classes one for the One to One mentor program which i have been a member of since 2009. The other was for the Psocial Ambassador program which was introduced only a couple years ago. Its getting better as the program matures, im sure that in 2 more years it should be polished nicely.

The meet and greet friday night is always fun as you walk through check the different vender booths and run into folks you met in the past or know them from online sources.

Then Saturday morning starts bright and early with breakfast then classes, which would you like to learn? Well what type of advocacy would you like? Are you political? Maybe you want to meet Patrick Stone and learn how to goto your state Capital, and try to get the laws changed in favor of the people instead of favoring insurance companies, or things like that. Its a great class, and Patrick is an awesome guy. Maybe you want to learn how to run a bingo night to bring in some money for the foundation. Well we have that too. They will teach you the fundamentals so you may get some ideas. Another awesome class i attended. Maybe the Citizen Pscientist in you wants some more information on the Microbiome. Yes i went there too. Maybe you want to hear Dr Lebwohl talk, yes he was there too. Maybe you were walking through the hallway and happened to catch Dr Nehal Mehta as he strolls through the hallway. Dr Mehta is a game changer as he discovered the inflammation in the body in Psoriasis patients. Then its off to dinner, because we had to be downstairs at 630am for the Chicago walk.

Unfortunately this is where i took a turn for the worse. Saturday night my feet swelled up like balloons. (Im on blood pressure medicine , plus being Psoriatic  i knew this was a possibility at anytime) It hurt to put my shoes on. I went home sunday, started coughing lightly, i thought this was the BP meds as sometimes it seems like a sinus drip from the meds, but it turned out to be an upper respiratory infection. It was bad i didnt sleep the next few days finally saw the doc and got treated. We also changed the BP meds and threw in a water pill. Well that flushed the system and now i have massive muscle spasms. They are so bad they are debilitating. If i get one i cant move very well just kinda fall down. This is really bad when driving. I called they doc who thought the water pill flushed out the potassium so lets try taking a pill and boom the cramp went away with 1 pill.

Fast forward one week, im getting some cramps back not sure what to do yet, as the doc did some extra tests and we are waiting for the results now.

So thats why its taken me 3 weeks to write about the conference etc, yes i have been to hell and back with this and still surviving. 🙂

Did you want to see pictures? Well just ask and ill post some.

This weekend ill be posting again this time becuase i saw a doctor last thursday and i would like to share the news with you all. All i am going to say is the comorbidities of Psoriasis Psuck. Have a beautiful night. I love you all.

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