Since becoming an advocate i have participated in many events. Most where there are other psoriatic patients, however i have participated in advisory board panels and it seems that everytime i do the ones putting on the event share their stories as well. They may not have Psoriasis or Psoriatic Arthritis, like i do, however they either have a family member with it or someone is battling another auto-immune issue or mental health etc. It never fails, everyone shares their stories and that opens the floor before we start sharing our personal experiences. Ive done this many times but this last meeting really made me think. Either everyone in the world is affected by something either through themselves or family, or because of the illnesses in their family they got into the fields they are in, helping patients. This kept going through my head all through the meeting, and after. I keep thinking about it because i believe its the former.
Think about it. Ill bet you know someone with some form of health issues. It could be depression, cancer, alzheimer’s, mobility issues etc. Yes everyone has been touched by something.
So… The next time you meet someone remember they too probably have a story to tell, they too maybe going through something as well.
So we finally had some good weather, 70-80F. No pain, unless i stand for a long time, all seems to be going well. I went through a bunch of things, decided to do some spring cleaning there were 2 boxes to store, 2 to give away so far, nice. I carried them to the garage, put the air conditioner in the window, then puttered around the house a bit more, and helped my landlord who lives next door (we bolted the power line back to the side of his house) . Some truck was driving down the street you know the ones with the canvas top? He had the top, with the metal bar UP. Ripped the power and cable lines and the power meter right off the house. This happened Thursday at 2:03 PM. I know the time because i jumped on a WebEX meeting, said hello and my screen went blank.
Utility company was out here and power was back on sometime between 4 and 5. Incredible they had a new line up meter mounted and power restored. I was already on another call, this one by phone, as far as internet? We are scheduled for Saturday…. Hence the cleaning etc no internet no life right? LOL
Ok internet was restored just after 4pm nice. i decided at that point to get online and rest a bit.
I fell asleep sometime just after 10pm. I woke at 330am. I had to goto the bathroom but it was 4:19 before i got off the couch. Thats where i had fallen asleep and now my back hurts like hell. Knowing full well theres no way i can lie back down i put the coffee on, did my business then slathered some CBD cream on my back.
Had coffee, more coffee and bacon and eggs, and guess what? Pain is gone. I swear i love this stuff. I was going to take a gelcap or some tincture but the cream did it. Ive tried a number of other brands that did nothing for me but this ones gold. Please check it out here if you are interested. http://bit.ly/2BRqYDr
Full disclaimer that is my affiliate link. i will get a small percentage of your purchase if you buy something today. I would not send you there if i didnt fully believe in the product or if it didnt work for me.
When i was a teen i wasn’t interested in working on cars. I wasnt interested in anything but girls and computers. Since i wasnt turning a wrench, wasnt building houses, chopping wood etc i didnt have many of the calluses that many men my age had. All the ladies told me how soft my hands were, yes i was a geek, always on the computer.
In 2005 i was 39 and I was starting to get Psoriasis. In 2007 my hands looked like they had an argument with a cheese grater, and lost. Below is a pic when it was about 1000 times better.
My hands were destroyed. My life changed forever. I thought i would never be the same.
I have since met many other patients advocates i am now clear but i hadnt thought of this until this last April. I was at Healthevoices when another Psoriasis advocate was walking by and we held hands for a second. She then told me i had the softest hands.
She made my day, my month, my year.
Even though Psoriasis has taken so much from me, hurt me so bad, i finally feel like i am winning this battle.