Time to spread the love. Shout out all your favorite HA’s! Make sure to share a few sentences explaining just how grateful you are for them.

Todd Bello, Lori-Ann Holbrook, Summer Scirocco, Alisha Bridges, Jaime-Lyn Moy, Brittany Ineson,  Howard Chang, and Julie Cerrone.

Over the last few years we have become a pretty close PsO Family, i love what you are all doing. I love when we all get together we do so much! Keep up the awesome work, i love you all!

 

Case of the Mondays. Write about something that gets you down, burns you out, or makes you sad. Purge it in a blog post. Turn it around at the end and tell Tuesday why you’re ready for it.

Something that , hmmm.. Its when people say, “Oh yea, i gotta little arthritis….”

“I know how you feel….”, “Its not that bad…”

Ummm, NO, you certainly dont. I have Osteo AND PsOriatic Arthritis in my joints PLUS 2 herniated disks in my back. You have NO CLUE how much i struggle just to make it throgh the day without falling on my face, without crumbling up in the corner and giving up on all.

Now that, that, is out of my system, come on Tuesday!

 

What’s the best thing that happened to you this week? Maybe you got great news or maybe ice cream was on sale- write about it and relive it!

I got to take a trip to Philly, stay at the Residence by Marriot in Old City. At the welcome desk i was given a bookbag that was customized by the team at TonicLC. Inside was an itinerary for saturday, a new notebook and pen, along with a nice fresh pretzel and some mustard that was purchased earlier that day.

So… i went upstairs to my room and relaxed a bit, ordered dinner, and sat down for some TV. Next thing i knew i heard chanting going on. I look outside and there were some Trump protesters marching down the street. Interesting…..

Saturday morning met with many hugs in the lobby of the hotel, then on to breakfast and meeting. I absolutely love being part of these meetings, we talk about advocacy, why we do what we do and how we can do better. We eat, share stories, there are happy moments, and sad moments, and its an awesome time.

I just want to say thank you Janssen Biotech and Tonic Life Communications for another awesome weekend. I wish i could have stayed another night to fully enjoy the beautiful old city Philadelphia.

Disclaimer:

Janssen Biotech Inc., paid for my travel expenses for the Summit. All thoughts and opinions expressed here are my own.

 

 

Dr Nossa,

Just want to say thank you for all you have done for me. Your persistence paid off. After putting me on Stelara for 1.5 years and seeing my hand not clear up, you realized there was more to it. You gave me an allergy test saying i ‘may’ have an allergy, like lets say nickel. You hit the nail on the head. Then you thought that was bad enough , unless i “ate oatmeal every day”, and i did. I no longer eat oatmeal, very little kale , spinach carrots unless i have vitamin c prior to eating. I am clear now.

Thank you you have changed my life for the better.

Friday follow! Create a must follow list for your community: •

Top 10 Tweeters •

the people i follow on twitter may or may not have Psoriatic diseases but they DO have chronic illnesses and therefore i find a LOT of information from these people. I also cheated a bit and included my PsObloggers list

Top 10 blogs •

some of the ‘must have blogs” that i follow

About

http://seeingpspots.com/

http://overcomingpsoriasis.com/

https://havinganatterwithnikii.wordpress.com/

https://morningmojoblog.wordpress.com/

http://www.tapeparade.com/

http://migraineurmutteringsandmusings.com/

 

Top 10 Facebook pages

here are 4 that i actually read from time to time. i really dont do much with facebook anymore.

https://www.facebook.com/groups/PSOWHAT/

https://www.facebook.com/groups/841393852637241/

https://www.facebook.com/groups/1931395873752767/

 

 

Yahoo Answers Post – Pretend you are writing a question about your condition – it can be as silly or humorous as you want. Now answer it. (Remember: Your answer can be just as silly)

Question: I see you have Psoriasis, is it contagious? 

Answer: OMG yes!! Run!! Quick!!

Seriously though it’s not contagious at all. You may start scratching if you hang around me long enough though.

 

 

Happy Hump Day! No denying life can get hectic, but let’s take a mid-week break to fantasize our ideal day! Would you go somewhere? Who would you spend it with? Have you had this day? If not – how could you make it happen?

 

My ideal day is waking up on a nice spring day. i step outside with my morning coffee and sit down to watch the fish swim by in the lake.after an hour or 2, go make some breakfast. Then go lie out and get a little sun, maybe go for a swim, maybe do a little fishing. Take a quick shower and goto the theater and watch a play, or a musical. Go home and make a nice steak on the BBQ, sip some scotch, or beer and watch the sun set at the far end of the lake.

We pretty much do this every year on vacation. Everyday for a week, just watching the fish, etc.We usually wind up with a house with no cellphone service, and hopefully the lake is far enough away that its out of reach of the WiFi.

Like this past August..  🙂

 

 

Day 8!

Little Engine Post. Write a list post with 10-15 lines that start each with “I think I can…” Write 5 lines at the end that start with “I know I can.” They can be big goals or something that’s been on your to-do list for the last few weeks- it’s all up to you.

I think i can – complete this months blogpost challenge!

i think i can rearrange my desk

i think i can rebuild my leaf blower

i think i can get thru the next 2 weeks while my girlfriend is in Israel.

i think i can – digitize most of this paper on my desk

i think i can – organize my email inbox

i think i can – clean out the above

i know i can post more on my blog

i know i can organize my thoughts a little more

i know i can keep spreading sunshine on your cloudy day

i know i can finish the leaves in the yard

i know i can  complete this challenge!

 

 

 

Was starting your advocacy journey a hard decision? Were you anxious and hesitant or were you excited and ready to share your story? Tell us how you chose to start advocating for your condition.

After being a mentee for a year my mentor (Todd Bello) said he thought i would make a great mentor myself. I took the class to learn how to then i had a dozen mentees all talking to me. It was incredible feeling! I then went on to Coach training but didnt feel i would make a great coach. So… then i became a Community Ambassador, then onto PsOcial Ambassador, which is where i am now.

Ahem…Sorry i get sidetracked easily.  Back to the question, was this a hard decision?

NO. This was the easiest thing i have ever done. I mean, HELLO! Do YOU need some help? Well im here to point you the right way. I LOVE what i do!