Next week i am travelling to Capitol Hill with the National Psoriasis Foundation to speak with congress about Psoriatic diseases. The NPF sent this:
“Each year, the National Psoriasis Foundation (NPF) brings a select delegation of psoriasis patient advocates, research scientists and medical professionals to Capitol Hill to meet with Members of Congress and their staff to advocate for greater federal attention for psoriatic disease research and programs. This unique mix of researchers speaking about promising areas of psoriasis research and future opportunities, alongside patients sharing about why psoriasis is so important to them personally is very powerful.”
Each of us has a story to tell. We are all different come from different states, towns etc, however we pretty much have the same story. I was happy and healthy and WHAM-O! Psoriasis/Psoriatic Arthritis ripped the rug out from under my feet. I went from 100%- 10% in no time. Dont get me wrong there are many days i feel fine, but then there are days i want to crawl under the blankets and i dont want to talk to anyone, because even talking would be too much effort.
I am relaxing now to hopefully be ready and give this my all, as the more people that hear my story and others like mine the more efforts there will be into finding a cure for this horrible disease. I dont know right now how many pictures ill be able to take or whatever but i do hope to post a few so you all can follow along on my trip to DC.
Questions? Comments? Please feel free!