its been awhile…..

why does it seem that i come here when i need to vent? i guess its just easier to open up when noone is judging you, telling you how to do it differently etc.just open up spill the beans and on your way. cool! yea.

so i finally got a new rheumy and he says he doesnt see PsA but just Osteo-Arthritis. BUT he says, i would not go stopping the Stelara i think you need to stay on the biologics. Umm yea, was the reply. Yes if i stopped my stelara or it quits on me, he will certainly see the PsA NOT Osteo, i know that, but for now lets see what hes got. He wants me to goto Physical Therapy twice a week. Yea cool i can do that. Next up is #SynVisc. He says both knees are bad even though i feel it more in the right knee. Insurance will cover so we will do 3 sessions and give both knees some fluid to play with, maybe walking up the stairs wont hurt so much. We shall see. i start PT next week and i get my first shot on the 29th.

Well despite the knees and back i feel ok. Blood pressure still is a little out of whack i lose my breath walking around. i wont even try to climb the stairs now. ill have to make an appointment for that too but its really getting too costly. they bumped up the cpay to 40$ for a specialist, PCP is still 20$ I guess they would rather you hang around and let the PCP keep guessing rather than goto a specialist.

anyway i turned 50 yesterday and im happy to have made the 1/2 century mark , would be awesome to make a full century, hopefully with a little less pain. talk soon.


One thought on “its been awhile…..

  1. Hi Jim,
    First off, happy belated birthday! The 1/2 century mark is quite the milestone.
    My motivation for messaging today is more business driven than anything else. My name is Charlie and I work with Liz Lewis Casting Partners in New York City. I’m working on a project with We are producing videos that will be on the website and have patients and doctors discussing their experience and/or expertise with Psoriasis, OAB (Overactive Bladder) and HIV. Some of the topics they will discuss are a general FAQ, treatment plans, living a normal life with the condition, etc. I stumbled upon your blog during my research, and I thought you’d be perfect for the project. It is a paid gig, and an awesome opportunity for networking.

    The shoot would only be 2 hours long on either March 24th or 25th in New York City. All that would be needed beforehand is a short 20 minute interview via Skype with the interested participants.

    I’m happy to provide you more information. Shoot me an email at Below is a rough example of how it would look.

    Thanks so much!


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